Wednesday, October 29, 2008

hip hip hooray (not)

The answer so far to why my hip is causing me so much pain is: I don't know.

The x-ray and CT scan I had Monday revealed that nothing much has changed since the last scans. Possibly a tiny bit of growth in one part of my hip tumor, but nothing substantial, and no additional fractures that would set off any alarms. (My lung tumors have stayed the same, except for the big one that keeps growing, but my oncologist doesn't want me to do another round of chemo right now. Maybe later, maybe a different form of chemo. Or maybe we'll have to start looking for clinical trials — argh, so much to think about.) I'll be seeing Dr. S. tomorrow and an orthopedic oncologist next week, and maybe the radiology doctor, too, but so far, at least over the phone, no one has been able to put a finger on what's causing the hip pain.

Meanwhile, I can't sleep without Vicodin, and even then, changing positions is painful. By day, I glide rather gracelessly around the house in my wheeled transport chair, bumping into corners and doorways. It's really frustrating to have a new set of limitations thrown in my path. I hope this turns out to be nothing but a major muscle strain caused by overuse during our trip. I hope it's not permanent. Because then we'll have to start thinking about how to outfit our house, yard, cars, etc., for wheelchair access. And that's not a project I want to worry about right now, on top of everything else.

12 comments:

LutherLiz said...

It must be hard to be in pain and have to deal with all those questions at the same time. Let me know if there is anything I can do to help you. You are always in my prayers and I hope it turns out to be a muscle strain from a wonderful trip and nothing more.

Anonymous said...

Oh Emilie... I so hope that you get better. I want you to have a happy, full life with your sweetie and your two beautiful boys.

Catherine

Anonymous said...

Like Lutherliz said, I pray (and feel it's pretty likely) that it's strain from the trip. Of course, that doesn't make it any less painful (physically and emotionally) for you, I know.

- Susanne

Rebecca said...

It must be so frustrating to not know what is causing the hip pain. I hope it resolves itself. Until then: One day at a time. Tomorrow will reveal itself tomorrow.

Megan Thomas said...

I have to believe that some positive karma must be right around the corner for you... Hang in there.

Love,

Megan

Betty M said...

Hoping that it is muscle strain. Oh and Happy Birthday to Steve too.

Anonymous said...

Emilie, I'm really glad that the tumors haven't changed much, and especially that the hip one isn't wrapped around a muscle like you feared. Phew! Thank goodness, too, for Vicodin. Let it do it's job to help you sleep at night and relieve the pain a bit. Sleep is SOOOO important for you. I trust that soon this will be behind you.

--Laura S.

Julie said...

I'm glad you blog as often as you do because I think about you throughout the day and wonder about you. Wish I were closer. I'd be there.

I saw a transport chair today in the Walgreen ad and wondered how you were getting around in it.

Call some members from my church in your area, they'd come help you with whatever you needed; although, I'm sure you are a very self-sufficient person, but being in pain is so hard not to mention having to watch after little ones.

Amy M said...

Emilie - I'm sorry you are having to go through this discomfort, it must be difficult. Thinking of you and the sunflowers. All my best.

Anna's Mommy said...

Hi there, sorry to read that this pain has continued for you.

A thought--I've had bursitis of my (right only) hip and that was very painful. I couldn't sleep on that side, at times walking was difficult. For me it was all related to my muscles and loss of core strength, which has since improved and the bursitis has mostly gone away.

Regardless, I'm glad they could rule out the more serious scenarios with your hip.

Piccinigirl said...

Oh Em, I hope not either. I hope that itis just overuse and soon you'll be feeling much better. I hate thinking of you in so much pain.
I'll be praying and sending good thoughts to you. *hugs*

SeaStar said...

I add my positive intentions and hopes that your pain is from muscle strain and not permanent.