Steve and I are truly overwhelmed and grateful for all the good wishes and prayers that have been left on this blog and in my e-mail inbox. Thank you so much. They mean a great deal to us, and we feel so loved.
I do have to say this, however:
I appreciate your encouragement and your anger. And I also appreciate any research you are doing on my behalf. God knows, I don't have time to do it all myself. But if you have medical input on my case — particularly of the nature that second-guesses my oncologists' advice — please post your name and e-mail address (so I can contact you for further information) and the sources of your information — including links to articles if you have them. Better yet, send me a private e-mail (to the address in my profile) so we can have a real discussion of my medical options.
I really do want to make sure we've examined all avenues of treatment, but I cannot possibly have any credibility with the doctor if I go in saying, "Well, an anonymous tipster on my blog says XYZ might be better than what you're suggesting. What do you think?" Seriously, the suggestions that my doctors don't know what they're doing messes with my head, and I don't need that right now. Dr. T. and Dr. S. are the main sarcoma experts at the University of Minnesota's Cancer Center, which is among the leading research and treatment centers for sarcomas. (On a related note, I will be among the subjects of discussion tomorrow at a "sarcoma conference" being held here in Minneapolis. Dr. S. plans to ask for additional input in my case.)
I do want to fight this with all my might, and I do want to be as well-informed as I can. But please realize that there's not much I can do with anonymous suggestions with no attributions or sources I can pursue. Thank you for your understanding.